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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Confused about my results
Hurrah for an official diagnosis! You may want to put the whole family on gluten free, as a preventative measure for the ones not testing positive right now. Remember, exposure to gluten triggers the Celiac genes your kids have inherited from you. Keeping them gluten free now, even though they don't test positive right now, can delay triggering Celiac... -
- knitty kitty replied to annirosex's topic in Related Issues & Disorders4
Dealing with celiac and menstrual cycle
@annirosex, Get your Vitamin D level checked. Low Vitamin D can mess up menstrual cycles. Vitamin D at healthy levels (80-100) acts as a hormone and regulates your immune system. Thiamine Vitamin B 1 is needed to activate Vitamin D, so adding thiamine in the form Benfotiamine would be beneficial. -
- AllyJR replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Confused about my results
Thank you! I saw a different provider this week who took one look at all my medical information and declared it was celiac in the first 5 minutes of the appointment. I am still a bit in shock but so very thankful to have an official diagnosis. The doctor told me to have my children tested and one of them came back with a "weak positive" TTG IgA! Not sure... -
- knitty kitty replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Still unsure.....
Good job! Brave astronaut! The other B vitamins can be stored in the body longer than thiamine. You won't mess them up. -
- badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Still unsure.....
I took my first 100 mg this morning. Let's see what happens. Still a bit nervous of messing up my other B vitamins since I don't have a B complex at the moment. Thanks for your replies Knitty Kitty!
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